Study to search for more answers on autism subject

“Some children simply don’t respond to IBI, and we need to find alternative treatment for those children,” she said. “Right now there is no clear indication in the (research) literature about ‘what next"’ What do we recommend for those children who aren’t helped by IBI"”

Her grant application was ranked first by the OMHF of 73 requests for funding of various projects. The research team includes Drs. Jane Summers and Peter Szatmari of McMaster University, and Dr. Lonnie Zwaigenbaum, formerly with McMaster.

The study will start this summer and last for two years, involving children in the Hamilton and Niagara areas who have been identified as candidates for IBI. For an eight-month period while the children are receiving IBI, some children who are not progressing will also receive functional behavioural skills training. Reitzel said the functional skills training will focus more specifically on helping the children practise basic day-to-day living skills such as eating, dressing, communicating and toileting.

IBI is a cognitive-based program, where intensive programming focuses on improving children's developmental outcomes by teaching thinking and language skills such as to understand instructions, to express themselves, to learn adaptive behaviour, social and play skills and to change their behaviours.

If the functional skills training based on ABA proves beneficial for some of the children with complex autism who don’t respond to IBI, not only will it be a treatment option in the best interests of the children, but it could mean more spots will become available in the IBI program for those more likely to benefit.

There are about 100 children in the Hamilton-Niagara area receiving IBI, and about 100 on the waiting list for the treatment.

IBI has been in the news extensively in recent months, as parents fight for greater government support of the treatment. They fought to have the treatment funded for children beyond the age of six, and most recently have been lobbying the government to allow the provision of IBI in the school setting.

While IBI is no longer automatically discontinued when a child turns six, the downside has been a substantial increase in waiting lists. Since 2004, the wait list for the therapy has burgeoned in Ontario to 1,200.